VisionTree®, a leader in Web-based patient-centered data management and provider communication systems, announced today that the Juvenile Diabetes Research Foundation (JDRF) has successfully launched a service to connect people with type 1 diabetes with relevant clinical trials. The web-based registry system is now fully launched and operational, with an average adoption rate of more than 500 participants per day. Participants can access the site at trials.jdrf.org
In response to the dramatic progress in diabetes research that now involves human clinical trials, JDRF launched its Clinical Trials Connection online service with VisionTree to help patients and their families find clinical trials, and information to allow informed decisions on whether or not to participate in a trial The interactive web-portal allows people to provide criteria such as the type of trial they are interested in, how long they have had diabetes, their age, and how far they would be willing to travel, and provides information about studies that match those characteristics
"The Clinical Trials Connection service will help advance diabetes research towards a cure by increasing awareness and connection to trials. JDRF is funding more human clinical trials than ever before, but is finding it more difficult to enroll participants in a timely and cost-efficient way. There is a real need in both the research and patient communities to help people learn about and take part in relevant clinical trials, to help speed the progress of our research goal of finding a cure for diabetes and its complications."
The increasing number of clinical trials, and the overall progress in diabetes research, make it harder for people with diabetes to keep up-to-date on what trials are available, and to make decisions on whether or not to participate in a study. People have asked JDRF for a simple to use service to find and compare trials that would be a significant benefit to them; in fact, more than 5,000 people had pre-registered for the site, which allows them to logon to their secure portal to enter personal health information and receive follow-up communication about relevant clinical trials. Feedback from initial participants showed that 75% are more likely to sign up for a clinical trial than before, and 78% found information on clinical trials for which they were looking.
"In working with JDRF, we configured our secure portal system so that patients can easily register and begin searching and comparing clinical trials. We included an advance search index and matching algorithm to extract only those clinical trials from the clinical trial database that match the patients' criteria and then allow for a side-by-side comparison with a rating system to improve the decision making process. All of us at VisionTree are excited to be working with JDRF and appreciate the opportunity to provide a meaningful service to the diabetes community."
To help promote the free web-service, JDRF has launched a full program of communications, including public service announcements that focus on encouraging people to take part in the search for a cure by finding out about clinical trial opportunities. The theme of the ad campaign is "What does hope look like?" The answer is that it looks like children and adults with type 1 diabetes taking an active role in science leading to a cure. Mary Tyler Moore, International Spokesperson for JDRF, is the face of the campaign and can be seen in the announcements.
The JDRF Clinical Trials Connection pulls trial data from the most recent update of the http://clinicaltrials.gov database. Additional clinical trial data sources can be added to the VTOC matching engine to expand search parameters and apply to other disease sites. There are more than 200,000 patient users at over 100 leading sites around the globe using the VTOC platform for integrated research and patient management. The VTOC system is based on a roles and rules-based platform providing a modular, interoperable approach to connect patients and their coordinated team with existing Electronic Medical Records, Practice Management Systems and Clinical Databases. The integrated VTOC workflow delivers patient/site-level communication & outcomes reporting for improved quality of care and population-based research.
JDRF is a leader in setting the agenda for diabetes research worldwide, and is the largest charitable funder and advocate of type 1 research. The mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is a disease which strikes children and adults suddenly and requires multiple injections of insulin daily or a continuous infusion of insulin through a pump. Insulin, however, is not a cure for diabetes, nor does it prevent its eventual and devastating complications which may include kidney failure, blindness, heart disease, stroke, and amputation.
For more information, visit www.jdrf.org
VisionTree Software, Inc., a Brainlab company, is a leader in cloud-based, patient-centered health electronic medical records, communication and population health data management systems. The VisionTree Optimal Care (VTOC) outcomes platform is MACRA compliant as a modular EHR and implemented at over 600 sites with 2.5M+ patient records in 15+ languages.
The VTOC platform is used for multi-center research, registries and population health initiatives across multiple domains. VisionTree's customer base consists of leading academic and community centers, research organizations and medical societies globally including 17 of the top 20 U.S. News and World Report hospitals.